Charles Sabine

Charles Sabine (born 20 April 1960, British Army Battalion HQ, Rinteln, West Germany), is a television journalist who worked for NBC News for 26 years, before becoming a spokesman for patients and families suffering from degenerative brain disease.[2]

Charles Sabine
Charles Sabine in Cape Town, 2009
Born (1960-04-20) 20 April 1960
Rinteln, West Germany
OccupationTelevision Journalist
TelevisionNBC News
AwardsEmmy Award News & Documentary category[1] (1989)

Early life and career

Sabine was educated at Brentwood School, England, then obtained a first class honours degree in Media Studies from Westminster University, where he was tutored by BBC Radio Producer Charles Parker.

He joined NBC in 1982 in London, and became a producer on the “Today” show in New York in 1987. According to NBC, "he participated in most of the major international news stories of the last two decades – Bosnia, Kosovo, Chechnya, Syria, Haiti, South Africa, Rwanda, Zaire, Iran, Poland, Romania, Hungary, Czechoslovakia, and Northern Ireland."[3] Sabine, as producer of the NBC Nightly News with Tom Brokaw team coverage of the Romanian Revolution, received an Emmy Award for his program segments which aired in December 1989, in the Outstanding General Coverage of a Single–Breaking News Story category of the News & Documentary Emmy Awards.[1]

Advocacy

In 2008, Sabine became an advocate for freedom of scientific research, and the victims of degenerative brain illnesses: in particular, Huntington's disease, from which his family suffers.[4]

Sabine contributed to the drafting of the late Senator Edward Kennedy's last act of legislation—the Genetic Information Nondiscrimination Act ("GINA"), designed to protect the rights of individuals with genetic predispositions in the American workplace and in insurance.[5]

Sabine was an active lobbyist in the successful implementation of the UK's Human Fertilisation and Embryology Act 2008.[6] The 50th Anniversary of Canada's Gairdner Foundation in 2009, attended by 22 Nobel Laureates, was marked by a debate between Sabine and Nobel Laureate Sydney Brenner about the future of personalised genomics.[7] In 2009 he was the star guest at the Italian National Telethon, for which a film about him was produced by RAI cinema.[8]

Sabine is a spokesperson for Huntington's disease lay associations around the world, among them:

Sabine is a member of the Global Advisory Council of the International Society for Stem Cell Research.[12]

On 30 June 2010, more than a year of campaigning and fundraising in partnership with Sir Michael Rawlins culminated in the launch of an All-Party Parliamentary Group for Huntington’s disease in the UK Parliament. Chaired by Lord Walton of Detchant and supported by more than 40 MPs and Lords, the purpose of the Group is to raise the profile of Huntington’s disease and establish a better methodology for estimating its prevalence, and thus lead to allocation of more appropriate resources for care and research.[13][14][15]

Sabine is Consulting Publisher to the Huntington's disease research news web platform HDBuzz, founded by Dr Jeff Carroll and Dr Ed Wild.[16]

Featured in the 2013 documentary ALIVE & WELL, Sabine discusses his advocacy work to raise awareness of Huntington's Disease.

References
  1. "1989 Nominations and Winners for Outstanding General Coverage of a Single Breaking-News Story, News and Documentary Section" (PDF). EmmyOnline. National Academy of Television Arts and Sciences. 1989. pp. 2–3. Retrieved 23 December 2017.
  2. "Charles Sabine - NBC Nightly News with Brian Williams | NBC News". NBC News. 2005-10-26. Retrieved 2015-09-27.
  3. "Charles Sabine - Nightly News". NBC website.
  4. "Genetic Testing Reveals Devastating Illness" Trudeau, Michelle. National Public Radio (22 November 2009)
  5. "Charles Sabine: Advocate for Science". Society for Laboratory Automation and Screening. Retrieved 15 June 2020.
  6. "Publications | Academy of Medical Sciences" (PDF). Acmedsci.ac.uk. Retrieved 2015-09-27.
  7. "Michael Smith Memorial Nobel Forum - The Gairdner Foundation". Archived from the original on August 14, 2011. Retrieved September 17, 2011.
  8. "Charles Sabine". NeuroStemCell. 2009-03-27. Retrieved 2015-09-27.
  9. Archived April 2, 2012, at the Wayback Machine
  10. Archived September 7, 2011, at the Wayback Machine
  11. "HDA Message Board - Powered by vBulletin". Hda.org.uk. Archived from the original on 2012-07-23. Retrieved 2015-09-27.
  12. Archived April 2, 2012, at the Wayback Machine
  13. "News". HDA. Retrieved 2015-09-27.
  14. "News". HDA. Retrieved 2015-09-27.
  15. "Is Huntington's disease twice as common as we thought? - HDBuzz - Huntington's disease research news". HDBuzz. Retrieved 2015-09-27.
  16. "People - HDBuzz - Huntington's disease research news". HDBuzz. Retrieved 2015-09-27.
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